Wednesday, July 24, 2019

tips for sleep and chronic illness

July 24, 2019
The Mighty Tip Line
Tips and Tricks for Living Your Best Life With a Condition or Disability
Welcome to The Mighty Tip Line – a weekly newsletter from The Mighty. Each week we will cover a different aspect of life with a health condition, illness or disability, bringing you our community’s top tips and resources for coping with it.
Catching some quality zzz’s can be a real challenge when you are struggling with pain, insomnia or other symptoms of a health condition. Check out the strategies that help our community sleep below.
Got a “tip” for us? Let us know which topics you’d like The Mighty Tip Line to cover by posting a Thought or Question on The Mighty with the hashtag #TipLine.
27 Tips for the Nights When Your Chronic Illness Makes It Hard to Sleep
6 Things Mighty Editors Tried to Sleep Better
12 Memes That Are Relatable If Your Chronic Illness Keeps You Up At Night
27 Products That Can Make Sleeping Easier If You Have Chronic Pain
What Sleeping Is Like When You Have a Chronic Health Condition

Share Your Experiences:

Paige asked…
Does your health condition make sleeping difficult? #TipLine
Rank how the following issues affect your sleep, from most to least:
A: Pain/Painsomnia
B: Restless Legs
C: Incontinence/Urgency
D: Anxiety
E: Insomnia
And share your favorite sleeping tips with other Mighties in the comments below!

Tuesday, March 12, 2019

Self-Care Tips and Ideas

1. Have a good, long, body-shaking cry.
2. Call a trusted friend or family member and talk it out.
3. Call in sick. Take comp time if you can. Take a mental health day.
4. Say no to extra obligations, chores, or anything that pulls on your precious self-care time.
5. Book a session (or more!) with your therapist.
6. Dial down your expectations of yourself at this time. When you’re going through life’s tough times, I invite you to soften your expectations of yourself and others.
7. Tuck yourself into bed early with a good book and clean sheets.
8. Watch a comforting/silly/funny/lighthearted TV show or movie. (“Parks and Recreation,” anyone?)
9. Reread your favorite picture and chapter books from childhood.
10. Ask for some love and tenderness from your friends on social media. Let them comment on your post and remind you that you’re loved.
12. Watch Youtube videos of Ellen DeGeneres and the adorable kids she has on her show.
14. Ask for help. From whoever you need it – your boss, your doctor, your partner, your therapist, your mom. Let people know you need some help.
15. Wrap yourself up in a cozy fleece blanket and sip a cup of hot tea.
16. Breathe. Deeply. Slowly. Four counts in. Six counts out.
17. Hydrate. Have you had enough water today?
18. Eat. Have you eaten something healthy and nourishing today?
19. Sleep. Have you slept 7-9 hours? Is it time for some rest?
20. Shower. Then dry your hair and put on clothes that make you feel good.
21. Go outside and be in the sunshine.
22. Move your body gently in ways that feel good. Maybe aim for 30 minutes. Or 10 if 30 feels like too much.
23. Read a story (or stories) of people who overcame adversity or maybe dealt with mental illness, too. (I personally admire JK Rowling’s story.)
24. Go to a 12-Step meeting. Or any group meeting where support is offered. Check out church listings, hospital listings, school listings for examples.
25. If you suspect something may be physiologically off with you, go see your doctor and/or psychiatrist and talk to them. Medication might help you at this time and they can assist you in assessing this.
26. Take a long, hot bath, light a candle and pamper yourself.
28. Cuddle someone or something. Your partner. A pillow. Your friend’s dog.
29. Read past emails/postcards/letters etc. from friends and family reminding you of happier times.
30. Knit. Sculpt. Bake. Engage your hands.
31. Exhaust yourself physically – running, yoga, swimming, whatever helps you feel fatigued.
32. Write it out. Free form in a journal or a Google doc. Get it all out and vent.
33. Create a plan if you’re feeling overwhelmed. List out what you need to do next to tackle and address whatever you’re facing. Chunk it down into manageable and understandable pieces.
34. Remember: You only have to get through the next five minutes. Then the next five. And so on.
35. Take five minutes to meditate.
36. Write out a list of 25 Reasons Why You’ll Be OK.
37. Write out a list of 25 Examples of Things You’ve Overcome or Accomplished.
38. Write out a list of 25 Reasons Why You’re a Good, Lovable Person.
39. Write out a list of 25 Things That Make Your Life Beautiful.
40. Sniff some scents that bring you joy or remind you of happier times.
41. Ask for support from friends and family via text if voice-to-voice contact feels like too much. Ask them to check in with you via text daily/weekly. Whatever you need.
42. Lay down on the ground. Let the earth/floor hold you. You don’t have to hold it all on your own.
43. Clean up a corner of a room of your house. Sometimes tidying up can help calm our minds.
44. Ask yourself: What’s my next most immediate priority? Do that. Then ask the question again.
45. Read some poetry. RumiHafizMary Oliver are all excellent.
46. Take a tech break. Delete or deactivate social media if it feels too triggering right now.
47. Or maybe get on tech. If you’ve been isolating maybe even interacting with friends and family online might feel good.
48. Go out in public and be around others. You don’t have to engage. But maybe go sit in a coffee shop or on a bench at a museum and soak up the humanity around you.
49. Or if you’re feeling too saturated with contact, go home. Cancel plans and tend to the introverted parts of yourself.
50. Ask friends and family to remind you that things will be OK and that what you’re feeling is temporary.

51. Put up some Christmas lights in your bedroom. They often make things more magical.
52. Spend a little money and treat yourself to some self-care and comfort. Maybe take a taxi versus the bus. Buy your lunch instead of forcing yourself to pack it. Buy some flowers that delight you.
53. Make art. Scribble with crayons. Splash some watercolors. Paint a rock. Whatever. Just create something.
54. Go wander around outside in your neighborhood and take a look at all the lovely houses and the way people decorate their gardens. Delight in the diversity of design.
55. Go visit or volunteer at your local animal rescue. Pet some animals.
56. Look at photos of people you love. Set them as the wallpaper of your phone or laptop.
57. Create and listen to a playlist of songs that remind you of happier times.
58. Read some spiritual literature.
59. Scream, pound pillows, tear up paper, shake your body to move the energy out.
60. Eat your favorite, most comforting foods.
62. Turn off the lights, sit down, stare into space and do absolutely nothing.
63. Pick one or two things that feel like progress and do them. Make your bed. Put away the dishes. Return an email.
64. Go to a church or spiritual community service. Sit among others and absorb any guidance or grace that feels good to you.
65. Allow yourself to fantasize about what you’re hoping or longing for. There are clues and energy in your reveries and daydreams that are worth paying attention to.
66. Watch Autonomous Sensory Meridian Response videos to help you calm down and fall asleep at night.
67. Listen to monks chantingsinging Tibetan bowls or nature sounds to help soothe you.
69. Revisit an old hobby. Even if it feels a little forced, try your hand at things you used to enjoy and see what comes up for you.
70. Go to the ocean. Soak up the negative ions.
71. Go to the mountains. Absorb the strength and security of them.
72. Go to the forest. Drink in the shelter, life and sacredness of the trees.
73. Put down the personal help books and pick up some good old fashioned fiction.
74. Remember: Your only job right now is to put one foot in front of the other.
75. Allow and feel and express your feelings – all of them! – safely and appropriately. Seek out help if you need support in this.
76. Listen to sad songs or watch sad movies if you need a good cry. (“Steel Magnolias, anyone?)
77. Dance around wildly to your favorite, most cheesy songs from your high school years.
78. Put your hands in dirt. If you have a garden, go garden. If you have some indoor plants, tend to them. If you don’t have plants or a garden, go outside. Go to a local nursery and touch and smell all the gorgeous plants.
79. If you want to stay in bed all day watching Netflix, do it. Indulge.
80. Watch or listen to some comedy shows or goofy podcasts.
81. Look for and Google up examples of people who have gone through and made it through what you’re currently facing. Seek out models of inspiration.
82. Get expert help with whatever you need. Whether that’s through therapy, psychiatry, a lawyer, clergy, let those trained to support you do it.
83. Educate yourself about what you’re going through. Learn about what you’re facing, what you can expect to feel, and how you can support yourself in this place.
84. Establish a routine and stick to it. Routines can bring so much comfort and grounding in times of life that feel chaotic or out of control.
85. Do some hardcore nesting and make your home or bedroom as  cozy and beautiful and comforting as possible.
86. Get up early and watch a sunrise.
87. Go outside and set up a chair and watch the sunset.
88. Make your own list of self-soothing activities that engage all five of your senses.
89. Develop a supportive morning ritual for yourself.
90. Develop a relaxing evening ritual for yourself.
91. Join a support group for people who are going through what you’re going through. Check out the listings at local hospitals, libraries, churches, and universities to see what’s out there.
92. Volunteer at a local shelter or hospital or nursing home. Practice being of service to others who may also be going through a tough time.
93. Accompany a friend or family member to something. Even if it’s just keeping them company while they run errands, sometimes this kind of contact can feel like good self-care.
94. Take your dog for a walk. Or borrow a friend’s dog and take them for a walk.
97. Do something spontaneous. Walk or drive a different way to work. Order something new off the menu.Listen to a Spotify playlist of new songs.
98. Work with your doctor, naturopath or nutritionist to develop a physical exercise plan and food plan that will be supportive to whatever you’re facing right now.
99. Pray. Meditate. Write a letter to God/The Universe/Source/Your Higher Self, whatever you believe in.
100. As much as you can, please try and trust the process.
101. Finally, please remember, what you’re going through right now is temporary. It may not feel like that from inside the tough time you’re in, but this too shall pass and you will feel different again someday. If you can’t have faith in that, let me hold the hope for you.

Wednesday, December 5, 2018

Items to keep by Bed



 Pain Medication and Water

pill organizer and camelbak water bottle
Pain relief and water. Sometimes I’ll wake up with such bad headaches from the fibro that I find it hard to even get out of bed. So I reach for my pain relief and my drink until it subsides,” wrote Victoria Checketts.
Ibuprofen and water,” Christy Frey said. “Sometimes taking some before bed helps me not hurt as bad, but having water nearby is always helpful. Gotta hydrate!”
Buy the pill organizer above for $9.97 from Amazon. Buy the water bottle above for $15.54 from Amazon.

2. Blood Pressure Monitor

wrist blood pressure monitor
Pain relief topical, BP cuff, flashlight, cell phone charger, and my cane in case I’m dizzy when I stand up due to low BP. Sometimes it’s 80/40 or lower just lying down. Had to take real time pictures of my BP reading on the cuff to get the doctor to believe it,” explained Colleen Sullivan.
Buy the wrist blood pressure monitor above for $47.12 from Amazon.

3. Compression Gloves

compression gloves
My compression gloves,” recommended Rachel L. Smith. “I sleep in them!”
Buy the compression gloves above for $21.95 from Amazon.
For more community recommendations, check out these 20 brands of compression wear.

4. Tablet Computers/E-readers

kindle e-reader and ipad
Theresa Callaghan wrote, “I keep my Kindle near at hand for those bad flare nights. Playing a game or reading a book helps a little to keep my mind from going off on one.”
Painkillers, iPad to read or play relaxation music which helps me sleep, crutch for when back and hip pain is too bad to lift myself up,” added Gillian Chipchase.
Buy the Kindle E-reader above for $79.99 from Amazon. Buy the 9.7-in iPad above starting at $329 from Apple.

5. Lip Balm

burt's bees lip balm
Water, sleeping mask, beanie hat, lip balm, phone and phone charger,” said Wendy Bader Engelbart. 
Deana Waller wrote, “Chapstick, kleenex, phone charger.”
“Bottle of water, chapstick, my phone and charger and meds,” added Tara Marancik.
Buy the Burt’s Bees lip balm above (2-pack) for £5.99 from Amazon UK.

6. Phone Charger

iphone charger and android charger
Justine Swayze recommended, “Pain relief, water, heating pad. Cell phone with charger and a remote to TV. Also some granola bars.”
A phone charger and/or electronic charger. There are days where I need help and the only way I can get help is by asking via my phone,” explained Mackenzie Porter. “Sometimes I need medication or ice but am in so much pain I can’t get out of bed. I call someone I live with for help.”
Buy the 10-foot USB iPhone charger above for $15.99 from Amazon. Buy the 6.6-foot USB Android chargers above (2-pack) for $8.99 from Amazon.

7. Fuzzy Socks

fuzzy microfiber socks
Brody Louise said, “Loose warm socks and gloves.”
Buy the fuzzy microfiber socks above (7 pairs) for $15.99 from Amazon.

8. Heating Products

heating pad and hothands toe warmers
Laura Mugridge wrote, “Pain meds are a must-have as well as water! I also have a compress you can warm up by massaging it with your hands for when I have certain points of my body flare up to save me having to attempt to get out of bed and go downstairs to heat a heat pack!”
“Definitely not on my nightstand, but I can’t live without my heat blanket anymore. When my nerves are flaring up, it calms them down to a manageable level. Even when I’m not having a flare, the comfort it brings can’t be replaced,” said Jennifer B.
Buy the XL heating pad above for $34.99 from Amazon. Buy the HotHands toe warmers above (40-pair) for $32 from Amazon.
For more community recommendations, check out these 20 heating products and 14 portable heating products that can help relieve pain.

9. CBD Products

CBD Pain Freeze rub from Hemp Bombs
Sommer Czossek told us, “Hemp Bombs CBD pain freeze cream [featured above]. The cream feels like the icy part of IcyHot with the bonus of CBD. Also a heating pad!”
Buy the CBD pain rub above (4 0z.) for $39.99 from Hemp Bombs.
For more community recommendations, check out these 15 CBD products.

10. Essential Oils

lavender and peppermint essential oil roll ons from doTERRA
Meds, always keep a bottle of water to take meds with in case I can’t move, essential oils with diffuser,” said Julie Phillips.
Buy the lavender essential oil roll on above for $18.33 from doTERRA. Buy the peppermint essential oil roll on above for $18 from doTERRA.

11. Sleep Mask

sleep mask
Recommended by Wendy Bader Engelbart.
Buy the sleeping masks above (2-pack) for CDN$ 15.95 from Amazon Canada.

12. Smart Home Device

amazon echo dot and google home
Echo Dot or Google Home to control the lights and turn the fan on and off between cold and hot flashes without getting up, water, pain pills, melatonin or sleeping pills, and a book or tablet,” Lisa Hero said.
Buy the Echo Dot above for $29.99 from Amazon. Buy the Google Home above for $129 from Google.
For more community recommendations, check out these helpful smart home devices.